This week was my first Tysabri infusion since before Christmas - I wouldn't say I look forward to it as such, as I never feel a great difference between the run up to the infusion and once having received it (although I believe it is keeping things in check and wouldn't go without it at the moment), but what I do look forward to is the time there and the people.
It's a friendly group with great nurses and after having been there once every four weeks for the past year and a half plus the IV steroids with the same nurses before that, there's great rapport and we have a laugh despite it all.
When the nurses have trouble canulating me (nothing new there - sometimes it's easy, other times it's not with no rhyme or reason) and ask if I've drank plenty I can reply tongue in cheek that I've not made sure I've been drinking, eating or keeping myself warm. With another of the motley bunch turning round with 'apart from that you're a model patient'. When you can have a laugh and not take things so seriously it's welcome and we do have a laugh. Many of these people I would never have encountered in my general life yet we meet up like a regular coffee catch up - sat down having a laugh and a break from our standard lives. And for the times we are quieter the infusion means some quiet reading time or listening to music without the thought that x, y, z needs doing and the feeling of guilt.
Then the next morning following the infusion I was back to the meditation centre after a Christmas break and catching up with another motley bunch. Even though we spend most of our time together not talking there is a camaraderie. Although the group is not a MS group I probably wouldn't be doing meditation if it wasn't for looking for a holistic approach to managing my MS.
I genuinely am appreciative for the motley bunches I feel part of and whilst things may change or the groups disband and we can't meet up like we currently do I'm thankful they are currently in my life.
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