Thursday, 18 August 2016

Calming Tea

That's it!
I've been reduced to the 'calming' tea, because drinking mojitos/Pimm's/wine/Baileys would be socially inappropriate at 10 am every morning on my own!  Plus there is always the fact that I'm one of the unlucky one's for who Gabapentin reacts with alcohol so I simply cannot manage the amount it sometimes feel would be necessary!

Its not been all that bad to be honest.  I have not appreciated the fact my son is used to having time away from me and we both need the time without one another.  He's just too young to be off on his own so its finding a compromise... holiday club!
I can go and drop him off and we get some time apart whilst he's being safely looked after and having fun with other children.

And whoever thought a guinea pig would be an undemanding pet (me) has never met Rocket.  So far this week its been 2-0 to her.  If she does not want to come in from the run, she runs around and refuses to be picked up - this is the guinea pig who is no hassle to be picked up - when she wants!
The second time, I found myself standing in front of the fridge not remembering why I was there (nothing new there with memory issues I have due to the good ol' MS, but usually there is something in it for me, or the boy).... Then I remembered, I was there for even more fresh food for her as she had been hassling me from her cage and looking up at me with those eyes of 'and where's mine?'!

I hate to say it but I have had to mention the C-word already... Christmas....  As I'm a crafter I have to start planning early.  Plus I cannot guarantee a relapse free time between now and then but I can guarantee the C-word will be happening in December! 
Added to this I offered to do a Hungry Caterpillar theme crochet gift (partly as a challenge for myself and because I love to crochet) forgetting just what it was that, that hungry caterpillar ate on the Saturday, and I'm already looking at a cross stitch sampler as a wedding gift for my sibling next year.

At times like this I look at my craft to do list and my reading list, ending up in a battle between doing some craft work and reading a book.  Not sure which one is winning just at the moment although with the Olympics on in the background its probably the craft work (but with coverage of sports like the men's cycling keirin, I'm not convinced any craft work happened with the suspense). 
I just need to resist adding anything further into my craft to do list or my reading list, both are long enough!

Monday, 8 August 2016

Flying Time

Well, I'm not quite sure where that time went... I had the third post all underway... and it never made it off paper.  When the chance came to get it typed up, it was another week and when I should have been doing a fourth post!
To say that the time has flown during school holidays - and the summer school holidays at that - is in itself impressive when we've not been away for the time to fly!
Although I do always try and have things to look forward to on my list of ideas of things to do and places to go, as much for my own sanity as my son's! 

So since the last post there's been what they deem the 'happiest day of the year', and I have to say - actually it was a happy day for me.  I took my son to the Steam Rally at Welland.  We missed the one last year and my son enjoyed it so much the year before that I had it down as a must do this year.
The smiles on my son's face and going on the fairground merry-go-round and Ferris wheel are enough to make me feel happy!  Listening to Grease and the Time Warp on the fairground organs just makes me giggle and I can't help but grin inanely!

The MonSter did follow me around as it had done that week but it didn't stop me (well I may have sat down at times rather than standing but that's more resting than stopping! ;-) )

I managed to make it out to a friend's for a catch up and a curry, but the MonSter wanted to play a game with the take away delivery... Would the delivery make it there before I needed to call it a night with fatigue and inability to maintain attention?  It was a close one, I can tell you! The delivery took over an hour and a half (on a Thursday night! - Now I'm not one to normally get deliveries and I would expect that on a Friday/Saturday night... but Thursday... really??!!) and to be honest I could have called it a night half an hour before the curry even arrived.  I refused though to give in and I kept myself going, the delivery arrived and we sat down to devour it, but then I had the predicament... just how long do you leave after finishing the meal before leaving?  Needless to say it wasn't that long afterwards I had to call it a night, and thankfully both my friends were very understanding about it.

There has also been my Tysabri infusion.  Initially I was unsure the best thing for my son,  I knew that a hospital is no place for him if it can be avoided but debated with whether I should call on friends or family to look after him.  I eventually decided on sending my son to football camp for the day.  It was great, my son loved it and it gave me plenty of time with no rushing around and no feeling guilty for spending the time to grab myself a coffee shop hot chocolate.
So far, I generally feel okay straight after the infusion and even managed a trip out the following day not letting the rain in the morning stop play.  


Friday started well with a trip to the woods on a hill (I LOVE the outdoors), but later that day I was wiped out.  Missing out on drinks with friends in the evening, struggling the next day and still feeling the effects of it all now!
Whether its because of the Tysabri, the MS in general or that it's that time of the month influencing the other two, who knows.  But that's one of the things about this MonSter, living with the uncertainty as unfortunately so many of us know.
I have had to take things easy but I have still been able to do things that I've been meaning to do - like getting a photo frame and lampshade for my son's bedroom.  I didn't quite expect to get it sorted this weekend, but at least I did something so that when its a good day I'm able to make the most of it.

Plus my parents took my son to his martial arts session and I had the luxury on a sunny (but not too warm) day to sit outside with a cup of tea, the peace and quiet, and my cross stitch. Bliss!

The MonSter has today had its moments and I can feel it, but there's a gem of living right by a bus stop into town, with a good museum in town and an exhibit that children can become involved in. Additionally going with a friend who takes us to discover FreakShakes at a local cafe! 

Its the small things that can make me smile.  The small smiles start of small but they do seem to grow in my heart.